Third Medical Review 2-3 Nov 2009

We were in Sime Darby Medical Centre (Subang Jaya) on Monday for Ah Jon 3rd medical review. Thanks God that his overall blood test results have improved. So, he went through another round of bone marrow test. As usual, he was sedated and he did not remember anything on the whole the procedure. He slept for 1.5 hours and when we woke him up, ...
... he was in a daze! His first question was "Is it done?".
... and "I don't remember anything!"
He was very tired. By the time we came out of the centre, it was 6:30PM. We arrived at the center at 9:30AM, and went straight for a blood test. The result was out in 2 hours.
So far, there was no HLA match amongst the siblings and the doctor think that it is not good to go for transplant as the complication from the transplant can be far worse. Please pray for miracle now!
Update 22 Dec 2009: We just got the news from the doctor that he has achieved complete cytogenetic remission. This is the first miracle. Please continue to pray that his hematologic milestone (normalised blood) would be achieved soon. Also pray that he will ultimately achieve complete divine healing!

Bone Marrow Results

I received an e-mail from our specialist in KL and he informed us that Ah Jon bone marrow test result has shown a complete cytogentic remission. This is a very good Christmas news for us. Now, the next milestone is hematologic. It must return to normal.
Please continue to pray for him so that he will receive complete healing from God.

Condolences

My deepest condolences to the parents of Samuel Yii who passed away on Friday. It is sad that a boy that young (16 yrs) should leave. My friend related to me that Samuel told his parents that the angels came to fetch him back just before he passed away. It was peaceful.
Samuel is another Leukemia (AML) sufferer, gone for bone marrow transplant and survived for two years.
May he rest in peace. He will be missed by many.

Thomas said, "Unless I… put my finger where the nails were… I will not believe… (John 20:25 NIV). Jesus said "Reach out your hand… Stop doubting and believe" (John 20:27 NIV). Thomas asks the question we all ask when we're struggling, "If God is so good, why do I feel so bad? If His message is so clear, why am I confused? If He's in control, why do good people wrestle with gut-wrenching problems?"…
"Lord, believing isn't easy when I'm hurt and confused, and You are silent. Like Thomas, I want proof that You love me. Help me see beyond my desire for peace and comfort, beyond my doubts and unanswered questions, and grasp the truth of Your unfailing love and grace."

No Match

Last week, my doctor in KL, Dr. Ng, broke the bad news to us... amongst the five siblings, there is no bone marrow match for Ah Jon.

I wasn't surprised because somehow, I have the intuition that there is no match. Perhaps, God has been asking me to trust Him more! This reminded me about the Israelite. God was leading them in everything they did .. war, protection, provision, healing, etc. Then His chosen people looked around and saw all the neighbors had kings, soldiers, beautiful palaces, etc. The neighbors showed off their wealth, etc. So, His chosen people pleaded with God to allow them to have a earthly figurehead. It seems that it is difficult for His people to trust a God whom they cannot see nor show to visiting dignitaries. God allowed and that was the beginning of the downfall of Israel.
We just have to trust Him more. There is no choice as there isn't one.
Please pray for Ah Jon. Ask God to show us His plan and direction.

Fever!

Ah Jon had a fever yesterday. I think he had a chill when he went to take shower while in Limbang. Upon reaching home last night, his temperature was 38.5 degC!
Mummy was so concerned that he got H1N1! But thanks God that he took 1 gm of VitC + panadol last night. Esther helped to massage his leg and he went to take a shower.
This morning everything was ok. Thanks and praise be to our God!

Doctor's Review

Ah Jon went to Normah today for his review. His fortnightly blood test can now be reduced to monthly test. Only problem now is his complain about pain in the joints, especially on the knee cap area. So, he has a detailed MRI scan of his knee bone. The specialist found that his condition is in good condition. I shall post again when I have more information.
The mum is in Kuching with him.

Ah Jon blood condition

Ah Jon blood test has shown a general improvement over the last one. We hope for a complete remission in six months.
Tomorrow, he will go to Kuching with mummy for a review with doctor Lau. And mummy will see a specialist there to check out why there is a minute traces of blood in her urine over the last many years. As we are both going to retire soon, we might as well use our medical benefit to ensure that we retire healthy.
Ah Jon pain-in his-bone is still there. Some said that it is due to the shrinking of his bone due to the "expansion" due to the bone marrow. We have no idea whether this is true. Anyway, do continue t o pray for him that his pain will go off and his response to Gliveec will continue to be positive.